Adherence and medication belief in patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension: A nationwide population-based cohort survey.

摘要: Background: Pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary (CTEPH) are rare diseases with a gradual decline in physical health. Adherence to treatment is crucial these very symptomatic life threatening diseases. Objective: To describe PAH CTEPH patients experience of their self-reported medication adherence, beliefs about medicines information treatment. Methods: A quantitative, descriptive, national cohort survey that included adult from all PAH-centres Sweden. All received questionnaires by mail: The Morisky Medication Scale (MMAS-8) assesses treatment-related attitudes behaviour problems, the Beliefs Medicines Questionnaire-Specific scale (BMQ-S) patient's perception drug intake QLQ-INFO25 multi-item medical information. Results: response rate was 74% (n = 325), mean age 66 ± 14 years, 58% were female 69% diagnosed 31% CTEPH. Time diagnosis 4.7 4.2 years. More than half (57%) reported high level adherence. There no difference patients' necessity medications control illness when comparing those high, medium or low Despite satisfaction information, concerns potential adverse effects taking significantly related Conclusions: Treatment adherence relatively but still needs improvement. multi-disciplinary team should, together patient, seek strategies improve prevent concern. (Less)