Transition into adulthood: Tuberous sclerosis complex, Sturge‐Weber syndrome, and Rasmussen encephalitis

作者: Elizabeth A. Thiele , Tiziana Granata , Sara Matricardi , Harry T. Chugani

DOI: 10.1111/EPI.12722

关键词: MigraineSeizure controlRasmussen's encephalitisRehabilitationRasmussen encephalitisSturge–Weber syndromeTuberous sclerosisPsychiatryMedicineIntellectual disability

摘要: Summary Children with tuberous sclerosis complex, Sturge-Weber syndrome, and Rasmussen encephalitis all have complex but differing needs in the process of transition/transfer to adult care. All three may be associated long-term normal intelligence or a varying degree intellectual disability. In emphasis care adulthood shifts from seizure control developmental issues renal psychiatric disease other issues. rehabilitation management disability migraine. encephalitis, transition particularly for those adolescent onset. Those successfully operated on childhood onset static problem potential do well life.

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