Quality of life in patients with craniocervical dystonia: Italian validation of the “Cervical Dystonia Impact Profile (CDIP-58)” and the “Craniocervical Dystonia Questionnaire (CDQ-24)”

摘要: Dystonia is a disabling and disfiguring disorder that can often affect many aspects of patients’ daily lives, lower their self-esteem. To date, quality life (QoL) has been assessed in dystonic patients using generic measures do not address the specific problems this diagnostic group. Recently, two disease-specific scales “The Cervical Impact Profile (CDIP-58)” “Craniocervical Questionnaire (CDQ-24)” were validated for measuring QoL craniocervical dystonia patients. No are currently available Italian. The aim our study was to produce validate Italian version CDIP-58 CDQ-24. We obtained CDQ-24 with back-translation design. Both applied population 94 along Short Form 36 health-survey questionnaire (SF-36), both before 4 weeks after botulinum toxin therapy. A group 65 controls matched sex, age comorbidity underwent SF-36. Internal consistency satisfactory all subscales. showed moderate high correlations similar items Sensitivity change confirmed by highly significant improvements subscales three out eight total score. This first on questionnaires evaluate These could be useful clinical practice trials.