Caring for a child with cystic fibrosis: the children's nurse's role

摘要: This article presents a narrative literature review of the psychosocial impact on family life caring for child diagnosed with cystic fibrosis. Diagnosis long-term illness in causes major upheaval lives both and family. Normal is often emotionally, socially, physically financially disrupted. Amid such disruption, parents attempt to cope by creating semblance order their lifestyle. Within an interdisciplinary approach caring, children's nurse plays pivotal role supporting families establish reconstruct lives, while coming terms knowledge that could die prematurely. In addition, nurse, his/her as teacher educator, empowers parents, children young people make informed decisions assists developing skills (often technical) care child. Cystic fibrosis one condition childhood, this explores main issues experienced following diagnosis CF, raised literature.