Psychosocial issues in hemophilia before and after the HIV crisis: A review of current research

作者: Regina Bussing , Suzanne Bennett Johnson

DOI: 10.1016/0163-8343(92)90006-V

关键词:

摘要: The human immunodeficiency virus (HIV) has had a fundamental impact on quality of life, delivery care, and directions research efforts for the hemophilia community. Studies psychosocial issues in before after HIV crisis are reviewed. Before this crisis, addressed personality factors coping, family functioning, psychological bleeding, effects home treatment, school functioning. After problems surfaced, focused epidemic, knowledge assessments, transmission prevention efforts. HIV-positive children with have not received sufficient attention. Future suggested.

参考文章(51)
Heather C. Huszti, Patrick J. Mason, James R. Clopton, Acquired immunodeficiency syndrome educational program: effects on adolescents' knowledge and attitudes. Pediatrics. ,vol. 84, pp. 986- 994 ,(1989)
H. Allen Handford, Susan Dickerson Mayes, Stephen J. Bagnato, Edward O. Bixler, RELATIONSHIPS BETWEEN VARIATIONS IN PARENTS‘ ATTITUDES AND PERSONALITY TRAITS OF HEMOPHILIC BOYS American Journal of Orthopsychiatry. ,vol. 56, pp. 424- 434 ,(1986) , 10.1111/J.1939-0025.1986.TB03474.X
Patrick J. Mason, Roberta A. Olson, Kathy L. Parish, AIDS, hemophilia, and prevention efforts within a comprehensive care program. American Psychologist. ,vol. 43, pp. 971- 976 ,(1988) , 10.1037//0003-066X.43.11.971
John G. Bruhn, James W. Hampton, Billy U. Philips, A psycho-social study of married hemophiliacs and their wives and hemophiliac adolescents and their parents Journal of Psychosomatic Research. ,vol. 15, pp. 293- 303 ,(1971) , 10.1016/0022-3999(71)90041-9
F A Logan, A Maclean, C A Howie, B Gibson, I M Hann, W L Parry-Jones, Psychological disturbance in children with haemophilia. BMJ. ,vol. 301, pp. 1253- 1256 ,(1990) , 10.1136/BMJ.301.6763.1253
NANCY A. MADDEN, JOSEPH TERRIZZI, STANFORD B. FRIEDMAN, Psychological issues in mothers of children with hemophilia. Journal of Developmental and Behavioral Pediatrics. ,vol. 3, pp. 136- 142 ,(1982) , 10.1097/00004703-198209000-00003
John G. Bruhn, James W. Hampton, Betty C. Chandler, Clinical marginality and psychological adjustment in hemophilia. Journal of Psychosomatic Research. ,vol. 15, pp. 207- 213 ,(1971) , 10.1016/0022-3999(71)90009-2
David Agle, Henry Gluck, Glenn F. Pierce, The risk of AIDS: psychologic impact on the hemophilic population. General Hospital Psychiatry. ,vol. 9, pp. 11- 17 ,(1987) , 10.1016/0163-8343(87)90095-8
I. Markova, C. D. Forbes, A. Rowlands, A. Pettigrew, M. Willoughby, The haemophilic patient's self-perception of changes in health and life-style arising from self-treatment. International Journal of Rehabilitation Research. ,vol. 6, pp. 11- 18 ,(1983) , 10.1097/00004356-198303000-00002