Ethical aspects of registry-based research in the Nordic countries

作者: Jonas Ludvigsson , Mette Nørgaard , Elisabete Weiderpass , Siri Håberg , Pierre LaFolie

DOI: 10.2147/CLEP.S90589

关键词:

摘要: … In this paper, we review ethical aspects of registry-based research, the legal framework… medical research is, however, that the personal integrity of participating individuals is guaranteed…

参考文章(54)
M Madsen, T F Andersen, J H Olsen, J Jørgensen, L Mellemkjoer, The Danish National Hospital Register. A valuable source of data for modern health sciences. Danish Medical Bulletin. ,vol. 46, pp. 263- 268 ,(1999)
Pihl J, Michelsen Ev, Clemmensen Ih, Storm Hh, The Danish Cancer Registry--history, content, quality and use. Danish Medical Bulletin. ,vol. 44, pp. 535- 539 ,(1997)
Peter Lange, Bartolome Celli, Alvar Agustí, Gorm Boje Jensen, Miguel Divo, Rosa Faner, Stefano Guerra, Jacob Louis Marott, Fernando D. Martinez, Pablo Martinez-Camblor, Paula Meek, Caroline A. Owen, Hans Petersen, Victor Pinto-Plata, Peter Schnohr, Akshay Sood, Joan B. Soriano, Yohannes Tesfaigzi, Jørgen Vestbo, Lung-Function Trajectories Leading to Chronic Obstructive Pulmonary Disease The New England Journal of Medicine. ,vol. 373, pp. 111- 122 ,(2015) , 10.1056/NEJMOA1411532
Anne Høy Seemann Vestergaard, Christian Fynbo Christiansen, Henrik Nielsen, Steffen Christensen, Søren Paaske Johnsen, Geographical variation in use of intensive care: a nationwide study Intensive Care Medicine. ,vol. 41, pp. 1895- 1902 ,(2015) , 10.1007/S00134-015-3999-3
J. Granlund, T. Svensson, F. Granath, F. Hjern, A. Ekbom, P. Blomqvist, P. T Schmidt, Diverticular disease and the risk of colon cancer - a population-based case-control study. Alimentary Pharmacology & Therapeutics. ,vol. 34, pp. 675- 681 ,(2011) , 10.1111/J.1365-2036.2011.04782.X
Sven Sandin, Diana Schendel, Patrik Magnusson, C Hultman, Pål Surén, Ezra Susser, T Grønborg, M Gissler, Nina Gunnes, R Gross, M Henning, M Bresnahan, A Sourander, M Hornig, Kim Carter, Richard Francis, E Parner, Helen Leonard, M Rosanoff, Camilla Stoltenberg, A Reichenberg, None, Autism risk associated with parental age and with increasing difference in age between the parents Molecular Psychiatry. ,vol. 21, pp. 693- 700 ,(2016) , 10.1038/MP.2015.70
Ingunn Olea Lund, Svetlana Skurtveit, Anders Engeland, Kari Furu, Edle Ravndal, Marte Handal, Prescription drug use among pregnant women in opioid Maintenance Treatment Addiction. ,vol. 108, pp. 367- 376 ,(2013) , 10.1111/J.1360-0443.2012.04049.X
Kathrine Bang Madsen, Annette Kjær Ersbøll, Jørn Olsen, Erik Parner, Carsten Obel, None, Geographic analysis of the variation in the incidence of ADHD in a country with free access to healthcare: a Danish cohort study International Journal of Health Geographics. ,vol. 14, pp. 24- 24 ,(2015) , 10.1186/S12942-015-0018-4
K. Furu, H. Kieler, B. Haglund, A. Engeland, R. Selmer, O. Stephansson, U. A. Valdimarsdottir, H. Zoega, M. Artama, M. Gissler, H. Malm, M. Norgaard, Selective serotonin reuptake inhibitors and venlafaxine in early pregnancy and risk of birth defects: Population based cohort study and sibling design BMJ. ,vol. 350, pp. 553- 554 ,(2015) , 10.1136/BMJ.H1798
Anna Cantarutti, Stephanie E. Bonn, Hans-Olov Adami, Henrik Grönberg, Rino Bellocco, Katarina Bälter, Body mass index and mortality in men with prostate cancer. The Prostate. ,vol. 75, pp. 1129- 1136 ,(2015) , 10.1002/PROS.23001