The ethics of participant-led biomedical research.
作者： Effy Vayena , John Tasioulas
DOI: 10.1038/NBT.2692
关键词:
摘要:
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sci-hub.se 参考文章(8)
Ben Goldacre, Bad Pharma: How Drug Companies Mislead Doctors and Harm Patients ,(2012)
Effy Vayena, John Tasioulas, Adapting Standards: Ethical Oversight of Participant-Led Health Research PLoS Medicine. ,vol. 10, pp. e1001402- ,(2013) , 10.1371/JOURNAL.PMED.1001402
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M. Fullerton, Nadja Kanellopoulou, David Lund, Daniel G. MacArthur, Deborah Mascalzoni, James Shepherd, Patrick L. Taylor, Sharon F. Terry, Stefan F. Winter, From patients to partners: participant-centric initiatives in biomedical research Nature Reviews Genetics. ,vol. 13, pp. 371- 376 ,(2012) , 10.1038/NRG3218
Tiago V. Pereira, Ralph I. Horwitz, John P. A. Ioannidis, Empirical Evaluation of Very Large Treatment Effects of Medical Interventions JAMA. ,vol. 308, pp. 1676- 1684 ,(2012) , 10.1001/JAMA.2012.13444
Catherine A Brownstein, John S Brownstein, David S Williams, Paul Wicks, James A Heywood, The power of social networking in medicine Nature Biotechnology. ,vol. 27, pp. 888- 890 ,(2009) , 10.1038/NBT1009-888
Melanie Swan, Health 2050: The Realization of Personalized Medicine through Crowdsourcing, the Quantified Self, and the Participatory Biocitizen. Journal of Personalized Medicine. ,vol. 2, pp. 93- 118 ,(2012) , 10.3390/JPM2030093
Paul Wicks, Timothy E Vaughan, Michael P Massagli, James Heywood, Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm Nature Biotechnology. ,vol. 29, pp. 411- 414 ,(2011) , 10.1038/NBT.1837
A. Cecile J. W. Janssens, Peter Kraft, Research Conducted Using Data Obtained through Online Communities: Ethical Implications of Methodological Limitations PLoS Medicine. ,vol. 9, pp. e1001328- ,(2012) , 10.1371/JOURNAL.PMED.1001328