Negotiated autonomy in diabetes self-management: the experiences of adults with intellectual disability and their support workers.

作者: L. C. Whitehead , H. T. Trip , L. A. Hale , J. Conder

DOI: 10.1111/JIR.12257

关键词:

摘要: Background The basic human right of autonomy is underpinned by the ability to practice decision-making. The rights people with disabilities engage in autonomous decision-making are promoted as best and includes decisions around health self-care. Little known about field long-term condition management. This paper explores how intellectual (ID) their support workers experience relation management diabetes. Methods Semi-structured interviews were completed residential independent living settings an ID type 1 (N = 8) or 2 (N = 6) diabetes (N = 17). participant ID's worker was present requested; however, run separately each rather than jointly. Thematic analysis undertaken, a constructivist lens informed both data collection analysis. Results The revealed strong process negotiated between daily diabetes. During times transition, roles renegotiated, promotion prefaced within context risk client safety. Goals increase independence drivers for negotiating greater autonomy. Conclusions The successful negotiation illustrates potential play key role conditions. study highlights primacy developing skills among ID. Promoting opportunities ethos supported through person-centred planning all vital working towards enhancing autonomy.

参考文章(28)
Claudia Da Silva Martins, Paul Willner, Amanda Brown, Rosemary Jenkins, Knowledge of Advocacy Options within Services for People with Learning Disabilities Journal of Applied Research in Intellectual Disabilities. ,vol. 24, pp. 274- 279 ,(2011) , 10.1111/J.1468-3148.2010.00608.X
Rebecca E. A. Walwyn, Amy M. Russell, Louise D. Bryant, Amanda J. Farrin, Alexandra M. Wright-Hughes, Elizabeth H. Graham, Claire Hulme, John L. O’Dwyer, Gary J. Latchford, Alison J. Stansfield, Dinesh Nagi, Ramzi A. Ajjan, Allan O. House, Supported self-management for adults with type 2 diabetes and a learning disability (OK-Diabetes): study protocol for a randomised controlled feasibility trial. Trials. ,vol. 16, pp. 342- 342 ,(2015) , 10.1186/S13063-015-0832-9
Paul Willner, Rosemary Jenkins, Paul Rees, Vanessa J Griffiths, Elinor John, None, Knowledge of Mental Capacity Issues in Community Teams for Adults with Learning Disabilities Journal of Applied Research in Intellectual Disabilities. ,vol. 24, pp. 159- 171 ,(2011) , 10.1111/J.1468-3148.2010.00573.X
C. Bigby, B. Bowers, R. Webber, Planning and decision making about the future care of older group home residents and transition to residential aged care. Journal of Intellectual Disability Research. ,vol. 55, pp. 777- 789 ,(2011) , 10.1111/J.1365-2788.2010.01297.X
L. Taggart, V. Coates, M. Truesdale-Kennedy, Management and quality indicators of diabetes mellitus in people with intellectual disabilities Journal of Intellectual Disability Research. ,vol. 57, pp. n/a- n/a ,(2012) , 10.1111/J.1365-2788.2012.01633.X
Jerome Bickenbach, Disability, “Being Unhealthy,” and Rights to Health Journal of Law Medicine & Ethics. ,vol. 41, pp. 821- 828 ,(2013) , 10.1111/JLME.12092
Virginia Braun, Victoria Clarke, Using thematic analysis in psychology Qualitative Research in Psychology. ,vol. 3, pp. 77- 101 ,(2006) , 10.1191/1478088706QP063OA
Susan Neely-Barnes, Maureen Marcenko, Lisa Weber, Does choice influence quality of life for people with mild intellectual disabilities Intellectual and Developmental Disabilities. ,vol. 46, pp. 12- 26 ,(2008) , 10.1352/0047-6765(2008)46[12:DCIQOL]2.0.CO;2