Needs of disabled children and their families.

作者: J Milner , C Bungay , D Jellinek , D M Hall

DOI: 10.1136/ADC.75.5.399

关键词:

摘要: In the new NHS those who provide services for disabled children need to measure and demonstrate their effectiveness, but there are no easily available outcome measures use by child development centres teams. The of an alternative approach, using a series statements good practice, is described. Parents with cerebral palsy were asked participate in semistructured interviews, ascertain value relevance these quality statements. most concerned about standard news breaking early follow up, sharing information, supply repair equipment. findings used modify checklist it proposed that this should form basis "charter families'.

参考文章(25)
David M. B. Hall, P. D. Hill, The Child with a Disability ,(1996)
Gloria L. Krahn, Cetrelia Kime, Ann Hallum, Are There Good Ways to Give `Bad News'? Pediatrics. ,vol. 91, pp. 578- 582 ,(1993)
N Britten, D Carman, Confidentiality of medical records: the patient's perspective. British Journal of General Practice. ,vol. 45, pp. 485- 488 ,(1995)
D. J. COTTRELL, K. SUMMERS, Communicating an evolutionary diagnosis of disability to parents. Child Care Health and Development. ,vol. 16, pp. 211- 218 ,(1990) , 10.1111/J.1365-2214.1990.TB00655.X
A. D. NURSEY, J. R. ROHDE, R. D. T. FARMER, Ways of telling new parents about their child and his or her mental handicap: a comparison of doctors’and parents’views Journal of Intellectual Disability Research. ,vol. 35, pp. 48- 57 ,(2008) , 10.1111/J.1365-2788.1991.TB01030.X