Health and economic consequences of fragile X syndrome for caregivers.

摘要: Objective To describe the health and economic burden experienced by caregivers of individuals with fragile X syndrome (FXS) test assumption that is associated specific dimensions problem behavior. Methods Three hundred fifty rated their son or daughter's behavior reported use medical services, caregiving time, impact on employment, financial burden, caregiver injuries, mental health, prescription drug use. Results The son's FXS posed a significant for in number areas. Visits to specialists were common both males (5.4 per year) females (5.1 year). Caregivers 9.2 hours day family an additional 5.5 paid help. Most families had at least some family, take average 19.4 from work each month care child's needs. Almost one third been injured child once past year; when injuries occurred, frequency was high (14.7 year), which 2.7 required care. Approximately seen professional anxiety, stress, depression during year, fourth taking medication help these symptoms. Caregiver highly behavior, most commonly irritability. Conclusion Problem strong contributor children adults FXS. Clinicians should be aware role plays adaptation access appropriate social support services.