Data Sharing in Genomics

摘要: This chapter looks at how data sharing practices in genetics give rise to ethical issues for both the researcher and participant. Like some of previous discussion book, it demonstrates an understanding social practice science is needed appreciate analyse fully that arise. Questions considered include acknowledgement contributions scientific work publications, which requires a career structure researchers. Discussion arising from also involves analysis notions ownership information, public private science, intellectual property, Enlightenment values knowledge. Also discussed are questions privacy confidentiality data; consent sharing; use archived data.