An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks

作者: Gina Johnson , Frances Lawrenz , Mao Thao

DOI: 10.1038/GIM.2012.20

关键词:

摘要: An empirical examination of the management return individual research results and incidental findings in genomic biobanks

参考文章(33)
Leslie E. Wolf, Charles E. McCulloch, Timothy A. Bouley, Genetic research with stored biological materials: ethics and practice. IRB: Ethics & Human Research. ,vol. 32, pp. 7- 18 ,(2010)
I. S. Kohane, K. D. Mandl, P. L. Taylor, I. A. Holm, D. J. Nigrin, L. M. Kunkel, Reestablishing the Researcher-Patient Compact Science. ,vol. 316, pp. 836- 837 ,(2007) , 10.1126/SCIENCE.1135489
Susanne B Haga, Laura M Beskow, None, Ethical, legal, and social implications of biobanks for genetics research. Advances in Genetics. ,vol. 60, pp. 505- 544 ,(2008) , 10.1016/S0065-2660(07)00418-X
J. Illes, ETHICS: Incidental Findings in Brain Imaging Research Science. ,vol. 311, pp. 783- 784 ,(2006) , 10.1126/SCIENCE.1124665
Conrad V. Fernandez, Eric Kodish, Charles Weijer, Informing Study Participants of Research Results: An Ethical Imperative IRB: Ethics and Human Research. ,vol. 25, pp. 12- 19 ,(2003) , 10.2307/3564300
Leslie E. Wolf, Bernard Lo, Untapped potential: IRB guidance for the ethical research use of stored biological materials. IRB: Ethics & Human Research. ,vol. 26, pp. 1- 8 ,(2004) , 10.2307/3563696
Juli Murphy, Joan Scott, David Kaufman, Gail Geller, Lisa LeRoy, Kathy Hudson, Public Expectations for Return of Results from Large-Cohort Genetic Research American Journal of Bioethics. ,vol. 8, pp. 36- 43 ,(2008) , 10.1080/15265160802513093
Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian Van Ness, Benjamin S. Wilfond, Managing incidental findings in human subjects research: Analysis and recommendations Journal of Law Medicine & Ethics. ,vol. 36, pp. 219- 248 ,(2008) , 10.1111/J.1748-720X.2008.00266.X