Assessment and management of pain in haemophilia patients.

摘要: Haemophilia patients experience acute pain during joint bleeds and chronic from haemophilic arthropathy. More than 50% of haemophilia have painful joints that cause disability impair quality life. Unfortunately, only a few clinical studies investigated the non-pharmacological or pharmacological treatments for adverse effects on health life children adults with haemophilia. There are no detailed algorithms guidelines management in patients, treatment is largely empirical. Therefore, standardized approach to needed. This should include close relationship between specialists staffs at centres; validated instruments specific assessing pain, disability; stepwise algorithms/protocols vs. prophylactic vs early treatment. A protocol definition problem best practices physicians. call action needed standardize approaches develop patients. review will highlight prevalence devastating impact currently available options identify unmet needs management.