A Parent’s Journey: Incorporating Principles of Palliative Care into Practice for Children with Chronic Neurologic Diseases

摘要: Rather than in conflict or competition with the curative model of care, pediatric palliative care is a complementary and transdisciplinary approach used to optimize medical for children complex conditions. It provides whole child, including physical, mental, spiritual dimensions, addition support family. Through voice parent, following case-based discussion demonstrates how fundamentals medicine, when instituted early course disease, can assist parents families shared decision making, ultimately improving quality life life-limiting illnesses. Pediatric neurologists, as subspecialists who provide chronic conditions, should consider invoking principles disease process, either through applying general facets or, if available, consultation specialty service.