Knowledge, Responsibilities, and Peer Advice From Care Partners of Patients With Parkinson Disease Psychosis.

摘要: Introduction: Care partners (CPs) of individuals with Parkinson disease psychosis (PDP) experience increased strain and rely on informal support networks. The objective this study was to characterize CP responsibilities, sources support, peer advice. Methods: This a mixed-methods cross-sectional study. sample recruited from the online Fox Insight cohort. CPs who indicated their care recipient suffered hallucinations and/or delusions were administered questionnaire regarding caregiving person PDP. A free-text question asked give advice hypothetical CP. Responses multiple-choice questions tabulated; responses grouped into categories. Results: 145 PDP included in analysis, mean age (standard deviation, SD) 66.4 (9.4) years; 110 (75.9%) women. Most (115, 79.3%) provided daily basis, range responsibilities. Only 16 (11%) learned about physician; communication challenges perceived embarrassment or having prioritize other issues limited appointment time. most common alert recipient's neurologist (n = 38, 30.4%); only 8 (6.4%) suggested medication changes. Conclusion: face clinician learn variety sources. Few advocate for medications control PDP, instead preferring non-pharmacological management strategies. Peer favored alerting physician, suggesting that do desire more information medical team.