Research Ethics 2.0: New Perspectives on Norms, Values, and Integrity in Genomic Research in Times of Even Scarcer Resources

作者: Caroline Brall , Els Maeckelberghe , Rouven Porz , Jihad Makhoul , Peter Schröder-Bäck

DOI: 10.1159/000462960

关键词:

摘要: Research ethics anew gained importance due to the changing scientific landscape and increasing demands competition in academic field. These changes are further exaggerated because of scarce(r) resources some countries on one hand advances genomics other. In this paper, we will highlight current challenges thereof integrity. To mark key developments research ethics, distinguish between what call 1.0 2.0. Whereas focuses individual integrity informed consent, 2.0 entails social within a broader perspective network. This network can be regarded as responsibilities which every stakeholder involved has jointly meet ethical posed research.

参考文章(31)
David B. Resnik, Kevin C. Elliott, Aubrey K. Miller, A framework for addressing ethical issues in citizen science Environmental Science & Policy. ,vol. 54, pp. 475- 481 ,(2015) , 10.1016/J.ENVSCI.2015.05.008
Carmen Aceijas, Caroline Brall, Peter Schröder-Bäck, Robert Otok, Els Maeckelberghe, Louise Stjernberg, Daniel Strech, Theodore H. Tulchinsky, Teaching Ethics in Schools of Public Health in the European Region: Findings from a Screening Survey Public health reviews. ,vol. 34, pp. 1- 10 ,(2012) , 10.1007/BF03391662
Hamilton Moses III, E. Ray Dorsey, Biomedical research in an age of austerity. JAMA. ,vol. 308, pp. 2341- 2342 ,(2012) , 10.1001/JAMA.2012.14846
Eric M. Meslin, Mildred K. Cho, Research ethics in the era of personalized medicine: updating science's contract with society. Public Health Genomics. ,vol. 13, pp. 378- 384 ,(2010) , 10.1159/000319473
Peter A. Lawrence, The politics of publication Nature. ,vol. 422, pp. 259- 261 ,(2003) , 10.1038/422259A
Raymond E. Spier, Ethics and the funding of research and development at universities Science and Engineering Ethics. ,vol. 4, pp. 375- 384 ,(1998) , 10.1007/S11948-998-0030-1
Niels Lynöe, Ziauddin Hyder, Mustaque Chowdhury, Lotta Ekström, Obtaining informed consent in Bangladesh. The New England Journal of Medicine. ,vol. 344, pp. 460- 461 ,(2001) , 10.1056/NEJM200102083440617
Dave Sharma, Luigi G. Martini, Austerity vs. growth--the impact of the current financial crisis on pharmaceutical innovation. International Journal of Pharmaceutics. ,vol. 443, pp. 242- 244 ,(2013) , 10.1016/J.IJPHARM.2012.12.022
Tom L. Beauchamp, James Franklin Childress, Principles of biomedical ethics ,(1979)