Involving consumers in the development of an educational program for cystic fibrosis carrier screening.

摘要: Input from consumers of health care was sought in developing an educational program to be provided individuals who are considering carrier testing for cystic fibrosis (CF). In addition, we assessed the ability professionals predict consumers' priorities with regard such information. A focus group six middle school teachers formulated questions that they would ask trying decide whether wanted screening CF. Then, other adults (n = 39) and without 60) a family history CF were presented asked select order which want them answered if offered test. After each question answered, test it them. clinic staff, clinical geneticists, genetic counselors 31) believed adult general population answered. There no differences Consumers learn about as well their risk being having child CF, before receiving information on reproductive options effect have family. Of 44% changed mind wanting during course selecting questions, 52% did so after first selected.(ABSTRACT TRUNCATED AT 250 WORDS)