From rhetoric to reality: including patient voices in supportive cancer care planning.

摘要: Objective  To explore the extent and manner of patient participation in planning regional supportive care networks throughout province Ontario. We consider disconnect between rhetoric reality involvement network co-ordination. Context  In 1997, Province Ontario, Canada, established a new, regionalized cancer system. By transferring responsibility to level networks, architects new provincial system hoped broaden decision making enhance responsiveness decisions communities. Research approach  Through qualitative, multiple case study approach we evaluated processes involving patients development. In-depth, semi-structured interviews document analysis were complemented by observations meetings, council meetings. Results  The development three regions reveal significant gap intentions involve health their actual involvement. This can be explained by: (i) lack clear direction regarding these networks; (ii) dominance centres activities; and, (iii) emergence competing priorities. Discussion  These trends expose complexity notion public how it is embedded social political contexts. failed attempt at efforts result benign neglect intents contexts which meant occur.