Understanding the Breast Cancer Experience of Survivors: a Qualitative Study of African American Women in Rural Eastern North Carolina

作者: Essie Torres , Crystal Dixon , Alice R. Richman

DOI: 10.1007/S13187-015-0833-0

关键词:

摘要: The purpose of this study is to gain an in-depth understanding African American breast cancer survivors’ experiences, barriers and facilitators in accessing treatment, challenges adherence follow-up care. We conducted seven focus groups with 32 women three rural counties eastern North Carolina during August–November 2013. Surveys were also utilized gather basic demographic health history information. Thematic analysis was performed using the immersion crystallization approach. Several common areas life affected by included faith support networks, psychosocial well-being, quality care issues. Faith God important coping mechanism essential all a critical facilitator survivorship. Support networks consisted family, church-family, friends, co-workers. concept fear discovery death, negative side effects social stigma having cancer. Factors that influenced provider-patient relationship age provider, perceived lack empathy, providers leaving treatment. Participants expressed their knowledge regarding number they experiencing after Results contribute assessment potential mechanisms used survivors (i.e., spirituality, positive attitudes, networks) can potentially be effective have impact on adjustment for survivors.

参考文章(12)
Ronit Elk, Hope Landrine, None, Cancer Disparities: Causes and Evidence-Based Solutions TAEBDC-2013. ,(2012)
Kevin Stein, Tenbroeck Smith, Youngmee Kim, C. Christina Bahn Mehta, Jeremy Stafford, Rachel L. Spillers, Frank Baker, The American Cancer Society's Studies of Cancer Survivors. Cancer Nursing. ,vol. 29, pp. 83- 85 ,(2006) , 10.1097/00002820-200603002-00029
Sheldon Greenfield, Maria Elizabeth Hewitt, Ellen Stovall, From cancer patient to cancer survivor : lost in transition National Academies Press. ,(2006)
Kathryn L. Taylor, Ruth M. Lamdan, Jamie E. Siegel, Rebecca Shelby, Mary Hrywna, Karen Moran-Klimi, Treatment regimen, sexual attractiveness concerns and psychological adjustment among African American breast cancer patients. Psycho-oncology. ,vol. 11, pp. 505- 517 ,(2002) , 10.1002/PON.616
Kathleen M. Russell, Diane M. Von Ah, R. Brian Giesler, Anna M. Storniolo, Joan E. Haase, Quality of life of African American breast cancer survivors: how much do we know? Cancer Nursing. ,vol. 31, ,(2008) , 10.1097/01.NCC.0000339254.68324.D7
Kimlin Tam Ashing-Giwa, Geraldine Padilla, Judith Tejero, Janet Kraemer, Karen Wright, Anne Coscarelli, Sheila Clayton, Imani Williams, Dawn Hills, Understanding the breast cancer experience of women: A qualitative study of African American, Asian American, Latina and Caucasian cancer survivors Psycho-oncology. ,vol. 13, pp. 408- 428 ,(2004) , 10.1002/PON.750
Barbara Kreling, Melissa I. Figueiredo, Vanessa L. Sheppard, Jeanne S. Mandelblatt, A qualitative study of factors affecting chemotherapy use in older women with breast cancer: barriers, promoters, and implications for intervention. Psycho-oncology. ,vol. 15, pp. 1065- 1076 ,(2006) , 10.1002/PON.1042
Kimlin Ashing-Giwa, Patricia A. Ganz, Understanding the Breast Cancer Experience of African-American Women Journal of Psychosocial Oncology. ,vol. 15, pp. 19- 35 ,(1997) , 10.1300/J077V15N02_02
Ellen D. S. López, Eugenia Eng, Elizabeth Randall-David, Naomi Robinson, Quality-of-Life Concerns of African American Breast Cancer Survivors Within Rural North Carolina: Blending the Techniques of Photovoice and Grounded Theory Qualitative Health Research. ,vol. 15, pp. 99- 115 ,(2005) , 10.1177/1049732304270766