Ascertaining invasive breast cancer cases; the validity of administrative and self-reported data sources in Australia

摘要: Statutory State-based cancer registries are considered the ‘gold standard’ for researchers identifying cases in Australia, but research using self-report or administrative health datasets (e.g. hospital records) may not have linkage to a Cancer Registry and need identify cases. This study investigated validity of self-reported data compared with records State-wide invasive breast Cases recorded on New South Wales (NSW) between July 2004 December 2008 (the period) were identified women 45 Up Study. separately suspected ascertained from: i) separations records; ii) outpatient medical service claims; iii) prescription medicines iv) Study baseline survey. Ascertainment flags included diagnosis codes, surgeries lumpectomy), services radiotherapy), used cancer, as well diagnosis. Positive predictive value (PPV), sensitivity specificity calculated within individual datasets, combinations across multiple datasets. Of 143,010 Study, 2039 (1.4%) had an tumour NSW during period. All examined high (>97.5%). from hospital-derived ‘lumpectomy cancer’ ‘(lumpectomy mastectomy) greatest PPV (89% 88%, respectively); later having greater (59% 82%, respectively). The flag highest ≥ 85% was 'diagnosis cancer' (both 86%). Self-reported 50% 85%, radiotherapy 73% 58% records. combination (diagnosis radiotherapy)’ (PPV 83%). In absence data, can be accurately sample identification, removing sample, risk adjustment. Invasive alone radiotherapy.