Development and implementation of the first national data quality standards for population-based birth defects surveillance programs in the United States.

作者: Marlene Anderka , Cara T. Mai , Paul A. Romitti , Glenn Copeland , Jennifer Isenburg

DOI: 10.1186/S12889-015-2223-2

关键词:

摘要: Background Population-based birth defects surveillance is a core public health activity in the United States (U.S.); however, lack of national data quality standards has limited use across state programs. Development will facilitate aggregation and utilization programs U.S.

参考文章(10)
Phyllis A. Wingo, Patricia M. Jamison, Robert A. Hiatt, Hannah K. Weir, Paul M. Gargiullo, Mary Hutton, Nancy C. Lee, H. Irene Hall, Building the infrastructure for nationwide cancer surveillance and control--a comparison between the National Program of Cancer Registries (NPCR) and the Surveillance, Epidemiology, and End Results (SEER) Program (United States). Cancer Causes & Control. ,vol. 14, pp. 175- 193 ,(2003) , 10.1023/A:1023002322935
Samantha E Parker, Cara T Mai, Mark A Canfield, Russel Rickard, Ying Wang, Robert E Meyer, Patrick Anderson, Craig A Mason, Julianne S Collins, Russell S Kirby, Adolfo Correa, National Birth Defects Prevention Network, None, Updated national birth prevalence estimates for selected birth defects in the United States, 2004–2006† Birth Defects Research Part A-clinical and Molecular Teratology. ,vol. 88, pp. 1008- 1016 ,(2010) , 10.1002/BDRA.20735
Maria Loane, Helen Dolk, Ester Garne, Ruth Greenlees, a EUROCAT Working Group, None, Paper 3: EUROCAT data quality indicators for population-based registries of congenital anomalies. Birth Defects Research Part A-clinical and Molecular Teratology. ,vol. 91, ,(2011) , 10.1002/BDRA.20779
Emery R. Hayhurst, THE NEED FOR A GENERAL SYSTEM OF SANITARY SUPERVISION OF INDUSTRIES IN TIMES OF WAR American Journal of Public Health. ,vol. 8, pp. 301- 303 ,(1918) , 10.2105/AJPH.8.4.301
R S Kirby, The quality of data reported on birth certificates. American Journal of Public Health. ,vol. 87, pp. 301- 301 ,(1997) , 10.2105/AJPH.87.2.301
M L Watkins, L Edmonds, A McClearn, L Mullins, J Mulinare, M Khoury, The surveillance of birth defects: the usefulness of the revised US standard birth certificate. American Journal of Public Health. ,vol. 86, pp. 731- 734 ,(1996) , 10.2105/AJPH.86.5.731
Mark A. Canfield, Margaret A. Honein, Nataliya Yuskiv, Jian Xing, Cara T. Mai, Julianne S. Collins, Owen Devine, Joann Petrini, Tunu A. Ramadhani, Charlotte A. Hobbs, Russell S. Kirby, , National estimates and race/ethnic-specific variation of selected birth defects in the United States, 1999-2001. Birth Defects Research Part A-clinical and Molecular Teratology. ,vol. 76, pp. 747- 756 ,(2006) , 10.1002/BDRA.20294
Marian F MacDorman, T J Matthews, Infant mortality statistics from the 2010 period linked birth/infant death data set. National vital statistics reports : from the Centers for Disease Control and Prevention, National Center for Health Statistics, National Vital Statistics System. ,vol. 62, pp. 1- 26 ,(2013)
Sheree L Boulet, Mikyong Shin, Russell S Kirby, David Goodman, Adolfo Correa, None, Sensitivity of Birth Certificate Reports of Birth Defects in Atlanta, 1995―2005: Effects of Maternal, Infant, and Hospital Characteristics Public Health Reports. ,vol. 126, pp. 186- 194 ,(2011) , 10.1177/003335491112600209
Debra L. Karch, Keri M. Lubell, Dionne D. Williams, Jennifer Friday, Nimesh Patel, Surveillance for violent deaths--National Violent Death Reporting System, 16 states, 2005. Morbidity and Mortality Weekly Report. ,vol. 57, pp. 1- 45 ,(2008)