‘Just a Bit of Fun’: How Recreational is Direct-to-Customer Genetic Testing?

作者: Heike Felzmann

DOI: 10.1179/2050287715Z.00000000062

关键词:

摘要: Direct to consumer (DTC) genetic testing has given rise much controversy, especially in relation for health diagnostic purposes. This paper will consider whether consumers' use of DTC should be understood as predominantly recreational. It argued that recreational can encompass all information domains, including most kinds predictive risk information. In the potential identity implications become a significant concern, more so than risks traditionally associated with testing. concluded while sector is beset by numerous problems and an increase literacy highly desirable, engagement may less problematic sometimes assumed.

参考文章(23)
David J. Kaufman, Juli M. Bollinger, Rachel L. Dvoskin, Joan A. Scott, Risky Business: Risk Perception and the Use of Medical Services among Customers of DTC Personal Genetic Testing Journal of Genetic Counseling. ,vol. 21, pp. 413- 422 ,(2012) , 10.1007/S10897-012-9483-0
Melanie Swan, Emerging Patient-Driven Health Care Models: An Examination of Health Social Networks, Consumer Personalized Medicine and Quantified Self-Tracking International Journal of Environmental Research and Public Health. ,vol. 6, pp. 492- 525 ,(2009) , 10.3390/IJERPH6020492
Martina C. Cornel, Carla G. van El, Pascal Borry, The challenge of implementing genetic tests with clinical utility while avoiding unsound applications Journal of Community Genetics. ,vol. 5, pp. 7- 12 ,(2014) , 10.1007/S12687-012-0121-1
GertJan B van Ommen, Martina C Cornel, Recreational genomics? Dreams and fears on genetic susceptibility screening. European Journal of Human Genetics. ,vol. 16, pp. 403- 404 ,(2008) , 10.1038/EJHG.2008.32
Josephine Johnston, Resisting a Genetic Identity: The Black Seminoles and Genetic Tests of Ancestry Journal of Law Medicine & Ethics. ,vol. 31, pp. 262- 271 ,(2003) , 10.1111/J.1748-720X.2003.TB00087.X
J. Kaye, The regulation of direct-to-consumer genetic tests. Human Molecular Genetics. ,vol. 17, ,(2008) , 10.1093/HMG/DDN253
Heather Skirton, Leigh Jackson, Lesley Goldsmith, Anita O’Connor, Genomic medicine: what are the challenges for the National Health Service? Personalized Medicine. ,vol. 9, pp. 539- 545 ,(2012) , 10.2217/PME.12.61
Pascal Borry, Martina C. Cornel, Heidi C. Howard, Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market Journal of Community Genetics. ,vol. 1, pp. 101- 106 ,(2010) , 10.1007/S12687-010-0023-Z
A. Nordgren, E. T. Juengst, Can genomics tell me who I am? Essentialistic rhetoric in direct-to-consumer DNA testing New Genetics and Society. ,vol. 28, pp. 157- 172 ,(2009) , 10.1080/14636770902901595