What Aspects of Quality of Life Are Important From Palliative Care Patients' Perspectives? A Systematic Review of Qualitative Research

摘要: Abstract Context Despite the availability of numerous tools professing to measure quality life (QOL) in palliative care setting, no single instrument includes all patient-valued domains. Objectives To identify which aspects QOL are important from patients' perspectives, aiding coverage, and content validity evaluation available tools. Methods A systematic review synthesis qualitative research was conducted according Preferred Reporting Items for Systematic Reviews Meta-Analyses guidelines. ASSIA, CINAHL, Cochrane library, Embase, Medline, PsycINFO, PubMed were searched database inception December 31, 2015. Published, peer-reviewed, English-language articles reporting primary data investigating domains adults with a progressive, life-limiting illness included. Studies priori exploring chosen aspect not Articles scoring ≤2 on excluded. Framework used key themes across studies. Results Overall, 3589 screened 24 studies Eight identified: physical; personal autonomy; emotional; social; spiritual; cognitive; healthcare; preparatory. All but one study discussed spiritual aspects, whereas only six mentioned cognitive aspects. Conclusion broad range people illnesses receiving palliation. Refinement measures is needed help ensure services address issues valued by patients such as preparation death health provision, elements seldom included currently preference-based inform value money decisions care.