Late effects in survivors of central nervous system tumors: reports by patients and proxies.

摘要: With the 5-year survival of patients with brain tumors increasing as treatment modalities are optimized, there a large number cancer survivors who experience long-term sequelae their treatment. Patient-reported outcomes represent an important and often unrecorded aspect survivorship. An Internet-based survivorship care plan tool which allowed or proxies to answer series questions about patient’s illness course was used collect patient-reported toxicity data for 254 individuals had undergone cancer. Demographic, treatment, side effect profiles were reviewed. Median age diagnosis 42 years, 88 % (n = 223) Caucasian. Only 11.1 % (n = 29) previously been offered plan. Of total group tumor survivors, 25.4 % responders described themselves living metastatic disease, while 14.5 % experiencing recurrence status post Late effects most commonly reported all malignancy using this cognitive changes, fatigue, skin hearing loss, weakness, numbness. The incidence late varied at time length since Individuals undergoing cancers diverse array sequelae, majority these do not have access familiarity Patient-focused tools evaluate plans comprehensive reporting well implementation management effects. Understanding that will help providers council regarding expectations prior symptoms in phase care.