Family-Centered Pediatric Emergency Care: A Framework for Measuring What Parents Want and Value.

摘要: Abstract Objective To identify and describe dimensions of family-centered care important to parents in pediatric emergency compare them those currently defined the literature. Methods A qualitative study was conducted involving 8 focus groups with who accompanied their child an department visit at a large tertiary-care health system. Participants were identified using purposive sampling achieve representation across demographic characteristics including child's race, insurance status, severity, and participant's relationship child. Focus segmented by patient age presence chronic condition. They moderated facilitator experienced health-related topics. 6-member multidisciplinary team completed content analysis. Results Sixty-eight participated. female (77%); aged 20 29 years (19%), 30 39 (47%), more than 40 (31%); black (44%), white (52%); married (50%). Their were: public (46%), (46%); admitted as inpatient (46%). The analysis resulted dimensions: 1) emotional support; 2) coordination; 3) elicit respect preferences, involve family decisions; 4) timely attentive care; 5) information, communication, education; 6) pain management; 7) safe child-focused environment; 8) continuity transition. Compared published literature, most notable differences combining for preferences into single dimension, separating physical comfort 2 management safe/child-focused environment. Conclusions resulting provide framework measuring improving delivery care.