The legal risks of returning results of genomics research

摘要: Published guidelines suggest that research results and incidental findings should be offered to study participants under some circumstances. Although have argued against the return of in research, many cite an emerging consensus there is ethical obligation at least results; debate quickly turns issues mechanics (e.g., which results? who discloses? for how long does exist?). commentators are careful distinguish this as rather than legal obligation, we worry may unjustifiably become standard care based on growing “consensus,” could lead a (negligence-based) duty offer individualized genetic results. We caution argue essay date has failed give adequate weight number fundamental policy undergird first instance, go differences between clinical care. confine our comments using data from large biobanks, topic proposed symposium issue.