Rare, epilepsy-related disorder including intellectual disability - A scoping review of caregivers' identified information needs.
作者： Merete Kristin Tschamper , Silje Systad
DOI: 10.1177/17446295211002348
关键词: Experiential learning 、 Epilepsy 、 Inclusion (education) 、 Information needs 、 Intellectual disability 、 Emotional distress 、 Information exchange 、 Clinical psychology 、 Related disorder 、 Psychology
摘要: AIMS The aims of this review were: (1) to obtain an overview caregiver-reported information needs; and (2) investigate if there are needs that unique for caregivers persons with rare epilepsies. METHOD We followed the scoping framework outlined by Arksey O'Malley preferred reporting items PRISMA. RESULTS Among 17 articles met inclusion criteria, 5 included Categories needs: Medical information; Information on how cope emotional distress; (3) Experiential from peers; (4) Interdisciplinary exchange. need disorder-specific seemed particularly important CONCLUSION There is a further studies, formal caregivers' needs.
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