Service Responses to People with Intellectual Disabilities and Epilepsy: A Systematic Review

作者: Janet Robertson , Susannah Baines , Eric Emerson , Chris Hatton

DOI: 10.1111/JAR.12228

关键词:

摘要: BACKGROUND: Epilepsy is highly prevalent in people with intellectual disabilities and associated increased mortality high healthcare usage. This systematic review summarizes research on service responses to epilepsy. METHOD: Studies published from 1990 were identified via electronic searches using Medline, Cinahl, PsycINFO Web of Science, email requests researcher networks, cross-citations. Information extracted studies was reviewed narratively relation themes. RESULTS: Thirty-five met the inclusion criteria. Overall study quality low, no RCTs or similarly robust intervention designs. Access specialists inconsistent. The importance proxies need for education regarding epilepsy staff, carers highlighted. CONCLUSION: There are methodologically service-related interventions Further improving delivery required substantiate findings reported here.

参考文章(66)
Little P, Duvall B, Litzinger Mj, Movement of individuals with complex epilepsy from an institution into the community: seizure control and functional outcomes. American Journal on Mental Retardation. ,vol. 98, pp. 52- 57 ,(1993)
David Atkins, Dana Best, Peter Briss, Martin Eccles, Yngve Falck-Ytter, Signe Flottorp, Gordon Guyatt, Robin Harbour, Margaret Haugh, David Henry, Suzanne Hill, Roman Jaeschke, Gillian Leng, Alessandro Liberati, Jacek Mrukowicz Nicola Magrini, James Mason, Philippa Middleton, Dianne O'Connell, Andrew D Oxman, Bob Phillips, Holger J Schünemann, Tessa Tan-Torres Edejer, Helena Varonen, Gunn Vist, John Williams Jr, Stephanie Zaza, Grading quality of evidence and strength of recommendations. BMJ. ,vol. 328, pp. 1490- 1490 ,(2004) , 10.1136/BMJ.328.7454.1490
C. L. Hom, P. Touchette, V. Nguyen, G. Fernandez, A. Tournay, L. Plon, P. Himber, I. T. Lott, The relationship between living arrangement and adherence to antiepileptic medications among individuals with developmental disabilities Journal of Intellectual Disability Research. ,vol. 59, pp. 48- 54 ,(2015) , 10.1111/JIR.12123
Mike P Kerr, Seth Mensah, Frank Besag, Bertrand De Toffol, Alan Ettinger, Kousuke Kanemoto, Andres Kanner, Steven Kemp, Ennapadum Krishnamoorthy, W Curt LaFrance Jr, Marco Mula, Bettina Schmitz, Ludgers Tebartz Van Elst, Julian Trollor, Sarah J Wilson, None, International consensus clinical practice statements for the treatment of neuropsychiatric conditions associated with epilepsy. Epilepsia. ,vol. 52, pp. 2133- 2138 ,(2011) , 10.1111/J.1528-1167.2011.03276.X
Dineke Vallenga, Mieke H.F. Grypdonck, Francis I.Y. Tan, Bert H.G.M. Lendemeijer, Paul A.J.M. Boon, Improving decision-making in caring for people with epilepsy and intellectual disability: an action research project Journal of Advanced Nursing. ,vol. 61, pp. 261- 272 ,(2008) , 10.1111/J.1365-2648.2007.04477.X
Peter R. Camfield, Patricia A. Gibson, Laurie M. Douglass, Strategies for transitioning to adult care for youth with Lennox-Gastaut syndrome and related disorders Epilepsia. ,vol. 52, pp. 21- 27 ,(2011) , 10.1111/J.1528-1167.2011.03179.X
Christine Linehan, Mike P Kerr, Patricia N Walsh, Gerry Brady, Cecily Kelleher, Norman Delanty, Frances Dawson, Mike Glynn, None, Examining the prevalence of epilepsy and delivery of epilepsy care in Ireland. Epilepsia. ,vol. 51, pp. 845- 852 ,(2010) , 10.1111/J.1528-1167.2009.02417.X