Every participant is a PI. Citizen science and participatory governance in population studies
作者： Alena Buyx , Lorenzo Del Savio , Barbara Prainsack , Henry Völzke
DOI: 10.1093/IJE/DYW204
关键词: Citizen science 、 Participatory governance 、 Population 、 Public administration 、 Sociology
摘要:
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sci-hub.se 参考文章(46)
Alan Irwin, Citizen Science: A Study of People, Expertise and Sustainable Development ,(1995)
Helen Pearson, Massive UK baby study cancelled Nature. ,vol. 526, pp. 620- 621 ,(2015) , 10.1038/526620A
Jonathan D. Boote, Mary Dalgleish, Janet Freeman, Zena Jones, Marianne Miles, Helen Rodgers, 'But is it a question worth asking?' A reflective case study describing how public involvement can lead to researchers' ideas being abandoned. Health Expectations. ,vol. 17, pp. 440- 451 ,(2014) , 10.1111/J.1369-7625.2012.00771.X
Gill Mein, Clive Seale, Helen Rice, Suneeta Johal, Richard E. Ashcroft, George Ellison, Anthea Tinker, Altruism and participation in longitudinal health research?: Insights from the Whitehall II Study Social Science & Medicine. ,vol. 75, pp. 2345- 2352 ,(2012) , 10.1016/J.SOCSCIMED.2012.09.006
Jane Kaye, Edgar A Whitley, David Lund, Michael Morrison, Harriet Teare, Karen Melham, Dynamic consent: a patient interface for twenty-first century research networks European Journal of Human Genetics. ,vol. 23, pp. 141- 146 ,(2015) , 10.1038/EJHG.2014.71
Barbara Prainsack, The powers of participatory medicine. PLOS Biology. ,vol. 12, ,(2014) , 10.1371/JOURNAL.PBIO.1001837
Deborah Lupton, The Commodification of Patient Opinion: the Digital Patient Experience Economy in the Age of Big Data Sociology of Health and Illness. ,vol. 36, pp. 856- 869 ,(2014) , 10.1111/1467-9566.12109
Elizabeth Murray, Ian R White, Mira Varagunam, Christine Godfrey, Zarnie Khadjesari, Jim McCambridge, Attrition revisited: adherence and retention in a web-based alcohol trial. Journal of Medical Internet Research. ,vol. 15, ,(2013) , 10.2196/JMIR.2336
J. E. Lunshof, G. M. Church, B. Prainsack, Raw Personal Data: Providing Access Science. ,vol. 343, pp. 373- 374 ,(2014) , 10.1126/SCIENCE.1249382
Leanne Stunkel, Christine Grady, More than the money: a review of the literature examining healthy volunteer motivations Contemporary Clinical Trials. ,vol. 32, pp. 342- 352 ,(2011) , 10.1016/J.CCT.2010.12.003