Fear and fertility in inflammatory bowel disease: a mismatch of perception and reality affects family planning decisions.

摘要: BACKGROUND: Smaller family size and voluntary childlessness has been reported in IBD; however the disease-related reasons for this from a patient viewpoint are not described. The aims were to 1) determine whether IBD patients perceptions of issues surrounding pregnancy childbearing influence their reproductive behavior 2) describe these specific concerns related fertility pregnancy. METHODS: All contactable subjects between 18-50 years age hospital-based database surveyed by postal questionnaire. Data obtained regarding gender diagnosis treatment body image sexual relationships as well both objective subjective data Comparisons made community norms where available. Contingency tables with Fishers exact test used. RESULTS: Of 365 255 responded (70%). mean was 35.5 overall 34.7 women. In all 34% participants male 127 had Crohns disease (CD) 85 ulcerative colitis (UC) 5 indeterminate (IC). average rate no different women CD UC (1.0 1.2 births/woman respectively; P = 0.553) compared 1.81 Australian Although 42.7% fear infertility only sought medical advice at same general population. Fear most evident those reporting previous surgery. Specific which appear have decreased included heritability risk congenital abnormalities medication teratogenicity. CONCLUSIONS: unusually high response indicates centrality patients. "Voluntary" group appears result about adverse outcomes that may be justified. Patients require accurate counseling addressing assist decision making.