No news is not good news: Information preferences of patients with cancer

作者: Lesley Fallowfield , Sarah Ford , Shon Lewis

DOI: 10.1002/PON.2960040305

关键词:

摘要: Many patients express dissatisfaction with clinicians' information-giving. When the information is complex or potentially upsetting, clinicians may deliberately withhold information, especially if they lack skills to handle patients' emotional reactions. Others underestimate amount of require. In this study, a heterogeneous sample 101 participating in trial assessing benefits receiving audio-taped recordings their ‘bad news’ consultations, completed questionnaire similar Cassileth's Information Styles Questionnaire. This assessed preferences for both general and specific about disease its treatment. Of sample, 94% expressed desire as much possible from oncologist, be it good bad; 4% wished only was news 2% declined extra preferring leave things up doctor. Patients wanting less no were older had poorer prognoses than those full disclosure. Although precise needs varied between patients, study showed that cancer wish well-informed diagnosis, prognosis, therapeutic options side-effects.

参考文章(24)
Michael A. Simpson, Therapeutic uses of truth Springer, Dordrecht. pp. 255- 262 ,(1982) , 10.1007/978-94-011-6246-3_13
S E Lind, M J DelVecchio Good, S Seidel, T Csordas, B J Good, Telling the diagnosis of cancer. Journal of Clinical Oncology. ,vol. 7, pp. 583- 589 ,(1989) , 10.1200/JCO.1989.7.5.583
S M Dunn, P U Patterson, P N Butow, H H Smartt, W H McCarthy, M H Tattersall, Cancer by another name: a randomized trial of the effects of euphemism and uncertainty in communicating with cancer patients. Journal of Clinical Oncology. ,vol. 11, pp. 989- 996 ,(1993) , 10.1200/JCO.1993.11.5.989
Christina G. Blanchard, Mark S. Labrecque, John C. Ruckdeschel, Edward B. Blanchard, Information and decision-making preferences of hospitalized adult cancer patients☆ Social Science & Medicine. ,vol. 27, pp. 1139- 1145 ,(1988) , 10.1016/0277-9536(88)90343-7