Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision

作者: Irene Tuffrey-Wijne , Jane Bernal , Gary Butler , Sheila Hollins , Leopold Curfs

DOI: 10.1111/J.1365-2648.2007.04227.X

关键词:

摘要: Title. Using Nominal Group Technique to investigate the views of people with intellectual disabilities on end-of-life care provision Aim.  This paper is a report study using as method elicit sensitive issues, in this example provision. Background.  Establishing consumer essential providing appropriate care, yet have historically been excluded from giving their opinion and participating research. Methods.  was used three groups, total 14 participants who had mild moderate disabilities. technique involves four steps: (1) silent generation ideas, (2) round robin recording ideas; (3) clarification ideas (4) ranking (voting). Participants were presented an image terminally ill woman (Veronica), asked: ‘What do you think could help Veronica?’ Findings.  generated mean nine individual responses. The highest rankings given issues around involvement one's own presence family friends, offering activities person, physical comfort measures. Conclusion.  People are capable expressing provision, should be asked so. presents effective acceptable methodology enabling generate views.

参考文章(37)
Donald P. Lawrence, Andrew J. Lipman, The management of fatigue in cancer patients. Oncology. ,vol. 18, pp. 1527- 1534 ,(2004)
Debra C Davis, Rosemary Rhodes, Amanda S Baker, Curriculum Revision: Reaching Faculty Consensus Through the Nominal Group Technique Journal of Nursing Education. ,vol. 37, pp. 326- 328 ,(1998) , 10.3928/0148-4834-19981001-14
Alison Dobbie, James W. Tysinger, Martin Rhodes, Joshua Freeman, Using a modified nominal group technique as a curriculum evaluation tool. Family Medicine. ,vol. 36, pp. 402- 406 ,(2004)
Michael V. Angrosino, Participant Observation and Research on Intellectual Disabilities The International Handbook of Applied Research in Intellectual Disabilities. pp. 161- 177 ,(2008) , 10.1002/9780470713198.CH7
Elizabeth Tong, Sarah A. Mcgraw, Edward Dobihal, Rosemary Baggish, Emily Cherlin, Elizabeth H. Bradley, What is a good death? Minority and non-minority perspectives. Journal of Palliative Care. ,vol. 19, pp. 168- 175 ,(2003) , 10.1177/082585970301900304
C K Sigelman, C J Schoenrock, E C Budd, J L Winer, P W Martin, Evaluating alternative techniques of questioning mentally retarded persons. American journal of mental deficiency. ,vol. 86, pp. 511- 518 ,(1982)
Sigelman Ck, Schoenrock Cj, Spanhel Cl, Budd Ec, When in Doubt, Say Yes: Acquiescence in Interviews with Mentally Retarded Persons. Mental Retardation. ,vol. 19, pp. 53- 58 ,(1981)
Irene Tuffrey-Wijne, John Davies, This is my story: I've got cancer British Journal of Learning Disabilities. ,vol. 35, pp. 7- 11 ,(2007) , 10.1111/J.1468-3156.2006.00421.X
Ruth Northway, Robert Jenkins, Quality of life as a concept for developing learning disability nursing practice Journal of Clinical Nursing. ,vol. 12, pp. 57- 66 ,(2003) , 10.1046/J.1365-2702.2003.00697.X
Anne Dewar, Marc White, Santiago T. Posade, Wilson Dillon, Using nominal group technique to assess chronic pain, patients' perceived challenges and needs in a community health region. Health Expectations. ,vol. 6, pp. 44- 52 ,(2003) , 10.1046/J.1369-6513.2003.00208.X