GeneTests-GeneClinics: genetic testing information for a growing audience.

摘要: The development and usage of two companion NIH-funded genetic testing information databases, GeneTests (www.genetests.org) GeneClinics (www.geneclinics.org), now merged into one web site, reflect the steadily increasing use expanding audience for information. Established in 1993 as Helix, a genetics laboratory directory approximately 110 listings, has grown database over 900 tests inherited diseases, 500 international laboratories, 1,000 U.S. clinics, resource educational/teaching materials reports summary test data. GeneClinics, founded 1997 an expert-authored, peer-reviewed, disease-specific knowledge base relating to patient care, steadily, containing 130 peer-reviewed full-text entries diagnosis, management, counseling specific diseases. In spring 2001 databases were October sites purpose seamless navigation GeneTests-GeneClinics site (www.genetests.org or www.geneclinics.org); was renamed "GeneReviews" avoid confusion with clinic directories. As moved out research venues routine medical practice, user these become expansive includes healthcare providers, patients, educators, policy makers, media. combined resources 3,200 visits/day.