Talking with Children About Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents.

作者: Allison Werner-Lin , Shana L. Merrill , Amanda C. Brandt

DOI: 10.1007/S10897-017-0191-7

关键词:

摘要: Families often express difficulty to their providers and request guidance regarding the task of communicating with children about potential adult-onset inherited cancer risks. This disclosure is complicated by parent’s ongoing adjustment mutation status, guilt at transmission child, concern over inciting distress in children, varied capacities home understand genetic information. Providers do not have adequate resources support or facilitate test results children. Optimally, communication risk an open, process within family. We recommend that parents tailor conversations child’s developmental, cognitive, emotional, behavioral abilities to comprehension. Based on well-established theories child development, empirical research family hereditary risk, clinical counseling experience, we offer recommendations for parental case examples critical discussion relevant topics, common questions sample scripted responses, additional printed online resources.

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