Coping and Transition in Young People with Chronic Kidney Disease (CKD) – Maintaining Best Practice: Paediatric Nephrology

摘要: Most young people coping with Chronic Kidney Disease (CKD) know that over time this disease can affect their physical health, lifestyle and psychological wellbeing. Transition services experiences differ; some also have better strategies than others. This article explores 1) whether there is a need for transition reorganization to maintain best practice CKD 2) what would make more effective research the future. Three coordinated meetings took place inviting contribute insights on questions. Twelve (12) from Renal Patient Support Group (RPSG) online invited (mean age = 15 years), Nine (9) attended Medicines Children Research Network (MCRN) Young Person's Advisory (YPAG) at Birmingham Children's Hospital, UK 14 years) 3) MCRN YPAG meeting Great Ormond Street London years). people's contribution be summarized: The ‘rounded experiences' before, during after of are still required, It important see if an association between positive smoother transition, Need appreciate care needs integrated ahead achieve 4) Supporting build aptitudes so they become independent cope health. An overall guideline factors in should prompted future teams supporting practice.