The socioeconomic impact of narcolepsy.

摘要: STUDY OBJECTIVE To evaluate the economic burden of patients suffering from narcolepsy. DESIGN Cross-sectional study. PARTICIPANTS 75 narcoleptic diagnosed at Hephata Klinik, Germany, who met International Classification Sleep Disorders criteria for MEASUREMENTS A standardized telephone interview was used to inquire about disease and its burden. In addition, health-related quality life scales (SF-36 EQ-5D) were mailed patients. Complete data available Direct indirect costs calculated societal perspective. All (mean +/- SD) in 2002 Euros (Euros). RESULTS Total annual 14,790 16,180 (US-dollars 15,410) per patient. 3,180 3,540 3,310), which consisted hospital (Euros 1,210 2,210; US-dollars 1,260), drug (narcolepsy medication: 1,020 1,420; 1,060), ambulatory care 90 90; 40), diagnostics 20 30; 20). More than 50% due newer wake-promoting drugs. amounted 11,390 15,740 11,860) patient mainly attributable early retirement disease. Narcolepsy listed as being cause unemployment by 32 with sleep attacks, there a significant correlation between higher compared without these attacks. CONCLUSIONS causes high socioeconomic burden, is comparable other chronic neurologic diseases, Indirect are considerably direct costs. Measures should be taken increase public awareness this Appropriate treatment must provided order assist continuing working life.