Home-Based End of Life Care for Children and their Families - A Systematic Scoping Review and Narrative Synthesis.

作者: Cari Malcolm , Katherine Knighting , Charlotte Taylor

DOI: 10.1016/J.PEDN.2020.07.018

关键词:

摘要: Abstract Problem There is a growing international drive to deliver children's palliative care services closer home. Families should have choice of where end life (EOL) provided with home as one option. This review aims establish the current evidence base relating EOL at Eligibility criteria A systematic scoping was conducted in accordance PRISMA-ScR reporting guidelines. Seven databases were searched identify papers published between 2000 and 2018. included specific relation to: being preferred place death; providing home; family experiences receiving support when their child died professionals' delivering this care. Sample Twenty-three met eligibility review. Results Engagement families planning discussions identified key factor facilitate setting. Consistent themes from data suggest that access 24/7 by team professionals specialist pediatric knowledge an essential aspect any model home-based Discussion application practice first comprehensive for children which offers valuable contribution policy, research. The mapped synthesised can inform development provision line unique wishes needs families.

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