Information Management in Cancer Registries: Evaluating the Needs for Cancer Data Collection and Cancer Research

摘要: Cancer registry data collection involves, at a minimum, collecting on demographics, tumor characteristics, and treatment. A common, identified, standardized set of elements is needed to share quickly efficiently with consumers this data. This project highlights the fact that, there need develop common elements; Surveys were developed for central cancer registries (CCRs) researchers (CRs) NCI-designated Centers, in order understand needs. Survey questions based focus, an evaluation research database responses, systematic review literature. Questions covered following topics: 1) Research, 2) Data collection, 3) Database/ repository, 4) Use data, 5) Additional items, 6) requests, 7) New fields, 8) set. surveys indicates that all registries' are used public health surveillance, 96% indicate also research. available online interactive tables from over 50% CRs 87% CCRs. Some other survey responses CCR treatment not complete example however interested variables have many review, but examine what by different entities. Registries can further enhance usage through collaborations partnerships connect interests making visible accessible.