Methodological challenges for measuring quality of care at the end of life.
作者： Floyd Jackson Fowler Jr , Kristen M Coppola , Joan M Teno
DOI: 10.1016/S0885-3924(98)00133-X
关键词:
摘要: Measurement is a fundamental step in improving the quality of care for dying patients and their families. Yet, there are important methodological challenges to be addressed. In conducting surveys about patient family experience, research needed regarding relative merits cost-effectiveness prospective or retrospective after patient's death. Proxies an source information given that majority can not interviewed last week life. Research understand who best able serve as proxy validity reports. The comparability alternative data collection strategies need examined. These other issues addressed designing reliable, valid, clinically manageable measures.
jpsmjournal.com
elsevier.com参考文章(8)
Joanne Lynn, Felicia Cohn, Frank E. Harrell, Alfred F. Connors, Douglas P. Wagner, Prognoses of seriously ill hospitalized patients on the days before death: implications for patient care and public policy. New Horizons-the Science and Practice of Acute Medicine. ,vol. 5, pp. 56- 61 ,(1997)
Irene Higginson, Clinical Audit in Palliative Care ,(1993)
Joanne Lynn, Felicia Cohn, Alfred F. Connors, Frank E. Harrell, Douglas P. Wagner, Prognoses of Seriously Ill Hospitalized Patients on the Days Before Death Society of Critical Care Medicine. ,(1997)
Jay Magaziner, Eleanor M. Simonsick, T.Michael Kashner, J.Richard Hebel, Patient-proxy response comparability on measures of patient health and functional status Journal of Clinical Epidemiology. ,vol. 41, pp. 1065- 1074 ,(1988) , 10.1016/0895-4356(88)90076-5
Norman A. Desbiens, Albert W. Wu, Steven K. Broste, Neil S. Wenger, Alfred F. Connors, Joanne Lynn, Yutaka Yasui, Russell S. Phillips, William Fulkerson, Pain and satisfaction with pain control in seriously ill hospitalized adults: Findings from the SUPPORT research investigations Critical Care Medicine. ,vol. 24, pp. 1953- 1961 ,(1996) , 10.1097/00003246-199612000-00005
Arnold M. Epstein, Judith A. Hall, Janet Tognetti, Linda H. Son, Loring Conant, Using proxies to evaluate quality of life. Can they provide valid information about patients' health status and satisfaction with medical care? Medical Care. ,vol. 27, ,(1989) , 10.1097/00005650-198903001-00008
Marilyn J. Field, Christine K. Cassel, Approaching Death : Improving Care at the End of Life ,(1997)
Mirjam A.G. Sprangers, Neil K. Aaronson, The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review Journal of Clinical Epidemiology. ,vol. 45, pp. 743- 760 ,(1992) , 10.1016/0895-4356(92)90052-O