Enhancing Reuse of Data and Biological Material in Medical Research: From FAIR to FAIR-Health.

摘要: The known challenge of underutilization data and biological material from biorepositories as potential resources for medical research has been the focus discussion over a decade. Recently developed guidelines improved availability reusability-entitled FAIR Principles (Findability, Accessibility, Interoperability, Reusability)-are likely to address only parts problem. In this article, we argue that should be viewed unified resource. This approach would facilitate access complete provenance information, which is prerequisite reproducibility meaningful integration data. A view also allows optimization long-term storage strategies, demonstrated in case biobanks. We propose an extension include following additional components: (1) quality aspects related reuse data, (2) incentives stimulate effective enrichment sets collections its on all levels, (3) privacy-respecting approaches working with human These FAIR-Health principles then applied both development common cloud architectures, due unprecedented growth volume breadth generation, well associated need process efficiently.