Understanding the impact of uveitis on health-related quality of life in adolescents.
作者： Saskia M. Maca , Arsine Amirian , Carolin Prause , Kathrin Gruber , Lamiss Mejdoubi
DOI: 10.1111/AOS.12016
关键词:
摘要: . Purpose: A reduction in quality of life (QoL) during an active phase disease has been shown for patients with uveitis various age groups. Adult were to also have reduced QoL-values despite being quiescent, but adolescents not investigated this respect. Methods: This clinic-based, cross-sectional pilot study assessed the overall health-related (HRQoL) (11–18 years) a history inactive and good visual function. Two independent generic (non-disease-specific) instruments applied, Inventory Assessing Quality Life German KINDL-R-questionnaire. Results: Thirty-seven adolescents, 20 females (54%) 17 males mean 15 ± 3 years diagnosis since 5 ± 2 years participated. Subgroups HRQoL those anterior intermediate localization uveitis, bilateral disease, application immunosuppressive therapy, short time diagnosis, high number recurrences. Conclusion: Even quiescence function, certain risk factors may result decreased juvenile patients. Our findings support need further evaluation patient group, validation specific psychometric inventories establishment interdisciplinary collaboration including psychological counselling.
sci-hub.se 参考文章(35)
A. Mingels, T. Hudde, C. Heinz, A. Heiligenhaus, Visusmindernde Komplikationen bei Uveitis im Kindesalter Ophthalmologe. ,vol. 102, pp. 477- 484 ,(2005) , 10.1007/S00347-005-1175-9
W.M. Hopman, M.B. Harrison, H. Coo, E. Friedberg, M. Buchanan, E.G. VanDenKerkhof, Associations between chronic disease, age and physical and mental health status. Chronic Diseases in Canada. ,vol. 29, pp. 108- 116 ,(2009) , 10.24095/HPCDP.29.3.03
E. Müller-Godeffroy, H. Lehmann, R. M. Küster, U. Thyen, Lebensqualität und psychosoziale Anpassung bei Kindern und Jugendlichen mit juveniler idiopathischer Arthritis und reaktiven Arthritiden Zeitschrift Fur Rheumatologie. ,vol. 64, pp. 177- 187 ,(2005) , 10.1007/S00393-005-0652-5
Rajni Jain, Paulo Ferrante, Gopi T Reddy, Susan Lightman, Clinical features and visual outcome of intermediate uveitis in children Clinical and Experimental Ophthalmology. ,vol. 33, pp. 22- 25 ,(2005) , 10.1111/J.1442-9071.2005.00938.X
Maria E. Zannin, Irene Buscain, Fabio Vittadello, Giorgia Martini, Maria Alessio, Jelka G. Orsoni, Luciana Breda, Donato Rigante, Rolando Cimaz, Francesco Zulian, Timing of uveitis onset in oligoarticular juvenile idiopathic arthritis (JIA) is the main predictor of severe course uveitis. Acta Ophthalmologica. ,vol. 90, pp. 91- 95 ,(2012) , 10.1111/J.1755-3768.2009.01815.X
Necla Buyan, Mehmet Atilla Türkmen, Ilmay Bilge, Esra Baskin, Mehmet Haberal, Yelda Bilginer, Sevgi Mir, Sevinç Emre, Sema Akman, Ozan Ozkaya, Kibriya Fidan, Harika Alpay, Salih Kavukcu, Lale Sever, Zeynep Birsin Özçakar, Nahide Dogrucan, Quality of life in children with chronic kidney disease (with child and parent assessments) Pediatric Nephrology. ,vol. 25, pp. 1487- 1496 ,(2010) , 10.1007/S00467-010-1486-1
CC Murphy, EH Hughes, NA Frost, AD Dick, Quality of life and visual function in patients with intermediate uveitis British Journal of Ophthalmology. ,vol. 89, pp. 1161- 1165 ,(2005) , 10.1136/BJO.2005.067421
Gary N. Holland, Christopher S. Denove, Fei Yu, Chronic anterior uveitis in children: clinical characteristics and complications. American Journal of Ophthalmology. ,vol. 147, pp. 667- 678 ,(2009) , 10.1016/J.AJO.2008.11.009
Clive Edelsten, M.Ashwin Reddy, Miles R Stanford, Elizabeth M Graham, Visual loss associated with pediatric uveitis in english primary and referral centers American Journal of Ophthalmology. ,vol. 135, pp. 676- 680 ,(2003) , 10.1016/S0002-9394(02)02148-7
U. Ravens-Sieberer, M. Bullinger, Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results. Quality of Life Research. ,vol. 7, pp. 399- 407 ,(1998) , 10.1023/A:1008853819715