How do elderly spouse care givers of people with Alzheimer disease experience the disclosure of dementia diagnosis and subsequent care

摘要: Objectives: To examine the experiences of spousal care givers Alzheimer patients to disclosure dementia diagnosis and subsequent care. Methods: A random sample 1943 people receiving medication for disease (AD) was sent a cross-sectional postal survey about their opinions on follow-up smaller qualitative study (n = 63) included open-ended questions concerning same topics. Results: The response rate 77%. Of respondents, 1214 1434 acknowledged themselves as spouse’s giver. mean age 78.2 years, that demented spouses, 80.5 years. givers, 63% were women. couples had long-lasting marriages (mean 52 years). 93% reported been disclosed openly spouse; 97% also preferred physicians inform diagnosis, although 55% spouses with AD developed depressive symptoms after disclosure. 71% felt they received sufficient information dementia. However, only 50% estimated spouses’ well organised. responses in indicated many grief anxiety. They expressed feelings loneliness uncertainty how deal Conclusions: Elderly quite satisfied given them support regard care-giving families failed meet needs adequately.