Infrastructure resources for clinical research in amyotrophic lateral sclerosis
作者： Alexander V. Sherman , Amelie K. Gubitz , Ammar Al-Chalabi , Richard Bedlack , James Berry
DOI: 10.3109/21678421.2013.779058
关键词:
摘要: AbstractClinical trial networks, shared clinical databases, and human biospecimen repositories are examples of infrastructure resources aimed at enhancing expediting and/or patient oriented research to uncover the etiology pathogenesis amyotrophic lateral sclerosis (ALS), a rapidly progressive neurodegenerative disease that leads paralysis voluntary muscles. The current status such resources, as well opportunities impediments, were discussed second Tarrytown ALS meeting held in September 2011. discussion focused on developed maintained by clinics centers North America Europe, various U.S. government federal agencies including National Institutes Health (NIH), Agency for Toxic Substances Disease Registry (ATSDR) Centers Control Prevention (CDC), several organizations support activities. Key recommendations incl...
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