Health-related quality of life over time in children with eosinophilic esophagitis and their families.
作者： Mary D. Klinnert , Lori Silveira , Rachel Harris , Wendy Moore , Dan Atkins
DOI: 10.1097/MPG.0000000000000451
关键词: Pediatrics 、 Symptom severity 、 Prospective cohort study 、 Medicine 、 Quality of life 、 Severity of illness 、 Health related quality of life 、 Rhinitis allergic 、 Eosinophilic esophagitis 、 Asthma
摘要: Objectives Existing treatments for pediatric EoE effectively reduce inflammation. However, impact of treatment on health-related quality life (HRQoL) over time patients with and their families has not been systematically assessed. We hypothesized that individualized multidisciplinary would improve both child family HRQoL time, improvements associated decreased symptom severity.
wkhealth.com参考文章(42)
J. Hatzmann, H. S. A. Heymans, A. Ferrer-i-Carbonell, B. M. S. van Praag, M. A. Grootenhuis, Hidden Consequences of Success in Pediatrics: Parental Health-Related Quality of Life—Results From the Care Project Pediatrics. ,vol. 122, ,(2008) , 10.1542/PEDS.2008-0582
James P. Franciosi, Kevin A. Hommel, Cristiane B. Bendo, Eileen C. King, Margaret H. Collins, Michael D. Eby, Keith Marsolo, J. Pablo Abonia, Karl F. von Tiehl, Philip E. Putnam, Alexandria J. Greenler, Allison B. Greenberg, Ronald A. Bryson, Carla M. Davis, Anthony P. Olive, Sandeep K. Gupta, Elizabeth A. Erwin, Mary D. Klinnert, Jonathan M. Spergel, Jolanda M. Denham, Glenn T. Furuta, Marc E. Rothenberg, James W. Varni, PedsQL eosinophilic esophagitis module: feasibility, reliability, and validity. Journal of Pediatric Gastroenterology and Nutrition. ,vol. 57, pp. 57- 66 ,(2013) , 10.1097/MPG.0B013E31828F1FD2
James W. Varni, Michael Seid, Paul S. Kurtin, PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care. ,vol. 39, pp. 800- 812 ,(2001) , 10.1097/00005650-200108000-00006
Mary Klinnert, Psychological Perspectives on Pediatric Eosinophilic Esophagitis Humana Press. pp. 375- 394 ,(2012) , 10.1007/978-1-60761-515-6_29
James W. Varni, Michael Seid, Tara Smith Knight, Karen Uzark, Ilona S. Szer, The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making. Journal of Behavioral Medicine. ,vol. 25, pp. 175- 193 ,(2002) , 10.1023/A:1014836921812
Michael R. Konikoff, Richard J. Noel, Carine Blanchard, Cassie Kirby, Sean C. Jameson, Bridget K. Buckmeier, Rachel Akers, Mitchell B. Cohen, Margaret H. Collins, Amal H. Assa’ad, Seema S. Aceves, Philip E. Putnam, Marc E. Rothenberg, A Randomized, Double-Blind, Placebo-Controlled Trial of Fluticasone Propionate for Pediatric Eosinophilic Esophagitis Gastroenterology. ,vol. 131, pp. 1381- 1391 ,(2006) , 10.1053/J.GASTRO.2006.08.033
Scott P. Pentiuk, Claire Kane Miller, Ajay Kaul, Eosinophilic esophagitis in infants and toddlers. Dysphagia. ,vol. 22, pp. 44- 48 ,(2007) , 10.1007/S00455-006-9040-9
Alex Straumann, Sebastien Conus, Lukas Degen, Stephanie Felder, Mirjam Kummer, Hansjürg Engel, Christian Bussmann, Christoph Beglinger, Alain Schoepfer, Hans–Uwe Simon, Budesonide Is Effective in Adolescent and Adult Patients With Active Eosinophilic Esophagitis Gastroenterology. ,vol. 139, pp. 1526- 1537 ,(2010) , 10.1053/J.GASTRO.2010.07.048
M. Klinnert, W. Moore, J. Miller, D. Atkins, D. Fleischer, G.T. Furuta, Impact of Eosinophilic Esophagitis (EoE) on Quality of Life (qol) for Youth and Their Families The Journal of Allergy and Clinical Immunology. ,vol. 127, ,(2011) , 10.1016/J.JACI.2010.12.442
Gregory S. Sawicki, Lawrence Rasouliyan, Ann H. McMullen, Jeffrey S. Wagener, Susanna A. McColley, David J. Pasta, Alexandra L. Quittner, Longitudinal assessment of health‐related quality of life in an observational cohort of patients with cystic fibrosis Pediatric Pulmonology. ,vol. 46, pp. 36- 44 ,(2011) , 10.1002/PPUL.21325