Comparing two measures of quality of life for children with haemophilia: the CHO‐KLAT and the Haemo‐QoL

摘要: Summary.  Disease-specific measures of quality life (QoL) for children with haemophilia are now available use in clinical studies [Haemophilia, 10, 2004, 9–16]. One these measures, the Canadian Haemophilia Outcomes – Kids’ Life Assessment Tool (CHO-KLAT), was developed Canada emphasis on perspectives [Pediatr Blood Cancer, 47, 2006, 305–11; Haemophilia, 34–43]. Another, Haemo-QoL, Europe, clinicians 8, 2002, 47–54; 17–25]. While two unique and independent, researchers from both were collaboratively linked throughout development testing. This study presents results a joint assessment respect to their strengths, limitations contributions. The primary questions addressed were: 1 What is relationship between CHO-KLAT Haemo-QoL terms summary scores item content? 2 What methodological contributions each measure? We conducted retrospective analysis data field testing measures. The included comparative basic validity, reliability items used measure. Overall, promising valuable QoL haemophilia. Our analyses confirmed psychometric properties tools, but identified some discrepancies them. Additional will allow greater understanding lend clarity how tools should be (separately or merged). present recommendation that run independently, preferably concurrently