作者: Peter R Dixon , David Feeny , George Tomlinson , Sharon Cushing , Joseph M Chen
DOI: 10.1001/JAMAOTO.2020.0674
关键词:
摘要: Importance Utility is a single-value, preference-based measure of health-related quality life that represents the desirability health state relative to being dead or in perfect health. Clinical, funding, and policy decisions rely on measured changes utility. The benefit hearing loss treatments may be underestimated because existing utility measures fail capture important associated with loss. Objective To develop comprehensive profile items describe how its can used generate hearing-related measures, including novel measure. Design, Setting, Participants This qualitative study, performed from August 1, 2018, 2019, tertiary referral centers, comprised systematic literature review, focus groups, semistructured interviews. review evaluated studies published 1982 2018. Focus groups included 8 clinical experts experienced measurement, diagnosis, treatment, rehabilitation Semistructured interviews 26 adults recruited an institutional data set outpatient aid otology clinics using stratified convenience sampling include individuals diverse ages, urban rural residency, causes loss, severity treatment experience. Main Outcomes Measures A subdomains collectively association life. Results search yielded 2779 articles MEDLINE, Embase, Cochrane, PsycINFO, CINAHL databases. Forty-five 1036 (age range, 18-84 years) were included. group 4 audiologists otologists. Hour-long conducted (13 women; median age, 54 years; 25-83 broad range causes, configurations, severities. From all 3 sources, total 125 generated organized into 29 derived World Health Organization’s International Classification Functioning, Disability Health. Conclusions Relevance multidimensional includes are not considered estimation by measures. presented evaluate life,