A survey of characteristics and current educational needs of hemophilia treatment centers within Asia Pacific.

摘要: Background Poor disease understanding and gaps in expertise regarding hemophilia care have been identified at all levels Asia Pacific. Continued education for involved healthcare professionals (HCPs) is crucial improved delivery. Objectives To identify training educational needs of HCPs Methods Clinicians working treatment centers (HTCs), from the World Federation Hemophilia Directory, were contacted by Pacific Working Group (APHWG). An electronic survey was sent to 161 15 countries which HTC identification complete assess characteristics, status, needs. Responses stratified national economic capacity. Results From March 23 June 6, 2016, clinicians 58 HTCs completed survey. Most reported availability specialists serve core patient requirements, although trained nurses geneticists low lower-middle income (LMICs). Although 98.3% had laboratory facilities, 8.8% do not participate any quality assessment schemes. The most common limitations current initiatives infrequency lack local language content. Education currently mostly received via internet, particularly among LMICs upper-middle (UMICs), though there strong preference meetings. Main barriers receiving funding time constraints. Unique priority topics musculoskeletal management, life management non-hematologists (high-income countries), inhibitor research outcomes Conclusion In Pacific, programs should be tailored according unique differing capacities resource settings.