SERIES : eHealth in primary care. Part 2: Exploring the ethical implications of its application in primary care practice

作者: Sarah N. Boers , Karin R. Jongsma , Federica Lucivero , Jiska Aardoom , Frederike L. Büchner

DOI: 10.1080/13814788.2019.1678958

关键词: AutonomyResearch ethicsDigital healthClinical decision support systemMedicineDoctor–patient relationshipPublic relationsDelegationJustice (ethics)eHealth

摘要: Background: eHealth promises to increase self-management and personalised medicine improve cost-effectiveness in primary care. Paired with these are ethical implications, as will affect patients’ care professionals’ (PCPs) experiences, values, norms, relationships.Objectives: We argue what implications related the impact of on four vital aspects could (and should) be anticipated.Discussion: (1) EHealth influences dealing predictive diagnostic uncertainty. Machine-learning based clinical decision support systems offer (seemingly) objective, quantified, outcomes. However, they also introduce new loci uncertainty subjectivity. The decision-making process becomes opaque, algorithms can invalid, biased, or even discriminatory. This has for professional responsibilities judgments, justice, autonomy, trust. (2) affects roles patients because it stimulate autonomy. autonomy compromised, e.g. cases persuasive technologies existing health disparities. (3) delegation tasks a network stakeholders requires attention responsibility gaps responsibilities. (4) triangulate relationship: patient–eHealth–PCP reconsideration role human interaction ‘humanness’ well shaping Shared Decision Making.Conclusion: Our analysis is an essential first step towards setting up dedicated ethics research agenda that should examined parallel development implementation eHealth. ultimate goal inspire practice-specific recommendations.

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