A model of delivering multi-disciplinary care to people with 46 XY DSD.
作者： Blake W. Palmer , Amy B. Wisniewski , Traci L. Schaeffer , Ashwini Mallappa , Jeanie B. Tryggestad
DOI: 10.1016/J.JPUROL.2011.08.013
关键词: Long-term care 、 MEDLINE 、 Peer support 、 Medicine 、 Paediatric endocrinology 、 Protocol (science) 、 Quality of life (healthcare) 、 Pediatrics 、 Multi disciplinary 、 Mental health 、 Family medicine
摘要: In 2006, a consensus statement was jointly produced by the Lawson Wilkins Pediatric Endocrine Society (LWPES) and European of Paediatric Endocrinology (ESPE) concerning management disorders sex development (DSD) [1]. A recommendation provided this that evaluation long-term care for people affected DSD should be performed at medical centers with multi-disciplinary teams experienced in such conditions. Here we provide our team's interpretation 2006 recommendations its translation into clinical protocol individuals 46 XY either female, or ambiguous, genitalia birth. Options surgical management, transitioning care, use mental health services peer support groups are discussed. Finally, preliminary data to application model delivering patients their families.
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