Reported Benefits of Participation in a Research Study
作者： Anabella G. Castillo , Lina Jandorf , Linda D. Thélémaque , Sheba King , Katherine Duhamel
DOI: 10.1007/S10900-011-9416-0
关键词: Medicine 、 Qualitative research 、 Clinical research 、 Ethnic group 、 Mass screening 、 MEDLINE 、 Family medicine 、 Nursing 、 Patient participation 、 Health care 、 Generalizability theory
摘要: Racial and ethnic minorities are significantly underrepresented in clinical research trials. Several socio-cultural systemic barriers, ranging from discrimination by the health care system, medical mistrust, to low physician referral rates lack of knowledge studies have been identified as impacting participation. One hundred fifteen participants were culturally matched interviewed followed up an additional four interviews over a 12 month period. Responses analyzed understand perceived benefits participating prospective, randomized, longitudinal trial about screening colonoscopy. Over two-thirds (64.4%) reported "knowledge, awareness, and/or information colonoscopy general health" being greatest benefit they received. Desire undergo pride completing study was ranked second third, respectively. Understanding reasons that choose participate will ultimately assist researchers close gap minority representation, allowing for greater generalizability findings.
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